Spoonies: The Culture of Staying Sick

Those who are sick and extremely online look for a community that understands them—one that accepts them and their various diseases. These individuals are referred to as “spoonies” online, a term that comes from a 2003 blog post by Christine Miserandino. In many cases, spoonies have been sick for a very long time. And since their identity revolves around their sickness, it’s hard for them to imagine a world in which they are cured.

“The rise of a certain brand of extremely online identitarianism has given the chronically ill not just visibility but a tribe unto themselves, one that commands enormous attention and resources,” writes novelist and culture critic Kat Rosenfield in her recent article for Reason.

Spoonies have illnesses ranging from Crohn’s to lupus to chronic Lyme disease to even long COVID-19. But learning to live with their symptoms, and not actively seeking out a cure,